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Dr. Stephen Salloway, MD, MS

Martin M. Zucker Professor of Psychiatry and Human Behavior, Professor of Neurology, Warren Alpert Medical School at Brown University

CADASIL is a rare genetic disorder that can cause dementia, but it often goes misdiagnosed as other neurodegenerative diseases.

Did one of your family members suffer from recurrent strokes or cognitive impairment beginning in their 40s or 50s? If you believe you have a family history of CADASIL, you may consider enrolling in the CADASIL Consortium’s national study.

To learn more, please click the button below to watch a recent webinar hosted by Dr. Stephen Salloway discussing the ongoing CADASIL Consortium research study in the United States.

"It can seem kind of daunting, you know, like oh a research study, how do I take the time for that, how do the logistics work? And I think the important thing is, ask questions and the rest will fall in line. The research team has been great with keeping us informed of the itinerary and giving us reminders so I would say it’s a great thing to participate in your lifetime, to be able to contribute to science and do what you can, and everything else will fall in line, everyone’s helpful and everyone wants to do what they can to make the study as effective as possible.”

"In having the detailed instructions, it was helpful to even see that they were so considerate to think about a snack break or lunch, so making sure we were taken care of nourished, and comfortable, and yeah, we were told multiple times through the study that this is all voluntary, so if any time we feel uncomfortable or if we want to stop, we can; so having that autonomy was helpful. "

"Is there anything you’d like to share about your experience in the research, or with others who may be considering participating in the research?" “Do it! It’s worth it. The people are so kind. The experience itself is calming. Knowledge is power, it really is. And nothing’s to be worried about with the research because everybody guides you, exactly where you need to go, they help comfort you, and it’s just not scary at all.”